Saturday, April 4, 2009

Days 7 and 8

Hi Everyone,

Ahhh...a nice weekend break from radiation. Weekends are the best! We started things off last night with a lovely Italian dinner with Randy's parents at Papa Vino's....yum! Today, we plan on taking photo's of stuff we want to sell on Craigslist and figure out if we should have our bedroom and spare room painted and carpeted...maybe that should be our next poll :-)

Anyway, Randy is doing well. He has had a couple of more headaches, but we are happy to say that Tylenol is a wonderful product that has taken those headaches away. A couple of people have asked about the dizzy spells. For the most part they are gone. He will occasionally experience a "falling" sensation when he closes his eyes, but it isn't anything severe. Randy has also had 2 days of outpatient physical therapy. His neck is quite sore and tight and he wonders if it will ever loosen up again (it will). He is being very good about doing his exercises at home as well!!!

We took Joshua with us to our Friday radiation appointment. God was so good. They were ready for Randy right when we walked in the door and 15 minutes later we were out of there! Of course, everyone loved Joshua. He was such a good boy...I was so concerned about taking him because I knew that the majority of patients there were older and very sick and probably not to into dealing with a toddler running around. The 15 minute visit was perfect and I think it lightened the mood at least for a moment. Yeah God!

I will be sure to post more next week...until then...thanks for reading and thanks for praying!

Love,
Randy, Rachel and Joshua

Wednesday, April 1, 2009

Days 5 and 6

Greetings,


Well, Randy just finished up his 6th radiation treatment today along with a consultation at the physical therapy center. Things are moving right along. We met with his radiation oncologist today and she is pleased that things are going well. All of us are praying that he continues to respond well to his treatments. We are monitoring his headaches and "balance" issues. He's only had 2 headaches at this point and occasional dizzy spells or off balanced episodes (typically when he closes his eyes). The doctor told us that the dizziness could increase as we progress through radiation due to the location of the treatment...cerebellum/brain stem...the equilibrium portion of the brain. As far as headaches...just praying that they don't increase or become uncontrollable with Tylenol. If they do increase it would indicate brain swelling and Randy would have to go back on steroids...not what we want.

His physical therapy will start up again either tomorrow or Friday at 3x/week for 4 weeks. We are pros at handling waiting rooms these days :-)

Anyway, all is good. God has blessed us beyond measure and we continue to Praise Him. We are spending quite a bit of time writing out questions for our appointment in May with Randy's neurosurgeon to go over more of what the future will/should/could hold. Our prayers continue to focus on complete healing and restoration without any recurrence.

Thank you again for everything. Every kind word, prayer, meal, gas card, note, email, household and childcare help has made this whole process much easier to walk through.

Love,
Randy, Rachel and Joshua

Thursday, March 26, 2009

Day 4

Hi Everyone,

Randy is doing really well with his radiation treatments. I've noticed certain areas in which his hair is starting to thin. They told us that he would lose portions of his hair so we've been anticipating it.
He also finished up his last day of in home physical therapy today with Sam. We will start up out patient therapy on Wednesday. Our hope is to have therapy 3x/week before radiation then leave from there straight to the cancer radiation center for those treatments. That will be our life for the next 4 weeks or so. Then just plain old radiation until through the first week of May, another MRI, and follow up with his neurosurgeon.
Also, we would like to thank everyone that has so graciously provided us with a meal and meals to freeze. I can't tell you how much that helps me out. I now have the meals planned out on my calendar and I literally don't have to think. It is a tremendous blessing. Everyday I look at the clock and wonder where the day went. The meals allow me to take just a minute to breathe as I wrap up the day....thank you!
Anyway, I probably won't post again until next week...have a great weekend!
Love,
Rachel

Wednesday, March 25, 2009

Day 3

All is well today! Radiation went smoothly. Just the normal tiredness....we can handle that. Rachel has a bit of a headache and tiredness...mostly weather related we think.

Thanks for praying!
Randy and Rachel

Tuesday, March 24, 2009

Radiation Day 2

Hi Everyone,

Well, things went much better today (so far). Randy was actually in a very giggly mood during lunch today. He is napping now, but hasn't complained of a headache. We are just praying that he continues to have a nice afternoon and evening. We also set up his outpatient Physical Therapy today. It's about 1 1/2 miles from our house so that is good. He will have therapy on M, W, and F at about 9:30. From there we will leave for radiation. This will allow him to have the strength for therapy and the afternoon to sleep if he needs to.

Thank you for continuing to pray....
Love,
Randy and Rachel

Monday, March 23, 2009

Randy's Head

Hi again,

Just asking folks to say a little or a big prayer for Randy. Today was his first radiaion treatment (see the post under this one) and he is really struggling with a rough headache and extreme exhaustion. He slept the entire afternoon and early evening. He is really hoping that the next six weeks don't look like today (me too). I told him that we can pray through anything and that all of you will help us with that. Thanks so much!

Love,
Rachel

Radiation - Day 1-MIRACLE 13

Hi Everyone,

Randy had his first radiation treatment today. All in all things went very well. His actual radiation time is about 20-25 minutes (not including wait time etc).. We also met with the nurse, physicians assistant, and doctor which took up more time (that will be typical on Mondays - and Wednesday next week).

For the most part Randy is feeling pretty good. He is rather tired (he's been sleeping for the better part of the afternoon) and has a headache. It is hard to tell at this point if these things are symptomatic of radiation or if it is just a coincidence. He did have to wake up early this morning because he had physical therapy at 8:30 a.m. - plus we did have a little scheduling glitch with the radiation center today....read on.

When Randy finished up treatment today we were told that they would not be able to give us the appt. time we had requested b/c they did not treat patients during that time frame unless it was for a new appt. Well, I informed them that I was not happy because I was told originally that my request should not be a problem. Let's just say that by the time I started to explain my frustrations to the nurse I was in tears. I think the very thought of having to pack Joshua up everyday at his nap time just about did me in along with the frustrations of having gone through the trouble of setting this up in advance so we wouldn't have this problem....it all just overwhelmed me. Let's just say, we were a bit stressed out, but God is so much bigger than scheduling conflicts - and He cares so much about us that He just worked it all out. The nurse and doctor talked things over with me and they were able to give us an 11:00 am standing appointment...PRAISE GOD...we are naming this one...MIRACLE NUMBER 13...He cares about the small stuff that seems so big to us!!!!!

So, things are moving along. It will be a long 6 weeks (although my goal is to have my thank you cards done by next week), but we are certain that God will continue to hold our hand through the big and the little things that come up. We continue to learn that leaning on Him is the only way to stay sane amongst the trials of life :-)

Have an incredible day.....
Much Love,
Randy and Rachel

Saturday, March 21, 2009

The Staples Are Out!

Hi Everyone,

Randy is SO HAPPY today!!!! We went to Dr. Chan's (radiation oncologist) office on Friday morning to have the remaining 15-16 staples removed from the back of Randy's neck. We were worried that they may be painful to remove due to the fact that they had been in for 3 weeks. You would think that by now we would lay our worries aside and be still and know that God is so much bigger than staples, but we are human. Anyway, Randy was relieved that there was no pain involved in the removal process. Just a bit of tenderness afterward, but nothing painful.

When we got home I shaved his head for him to prepare for his first radiation treatment on Monday. He was full of smiles to say the least :-) He was also able to turn his neck from side to side a bit more than normal in Physical Therapy. Goodbye Staples....Hello more neck movement! His neck still has a long way to go in the recovery process, but for just over 3 weeks post-op, he is doing great!

Anyway, say a prayer for us as we look forward to next week. It will be busy and exhausting for both of us, but we are so thankful that there is medicine available to fix these pesky problems. We are also thankful that our God is plenty big enough to give us the strength to continue moving forward in this journey. Life is certainly good!

Have an awesome weekend. I will try to post again on Monday after his first treatment.

Love,
Randy, Rachel, Joshua and Mocha

Tuesday, March 17, 2009

comments revisited

ah-ha ....

I think I have fixed it so that ANYONE can comment on our blog....you do not have to use the google account we set up. Again, I think this is the case...not sure...try it out and let me know :-)

~Rachel

Still plugging along

Hi Everyone,

Just a quick note to let everyone know that we are still hanging in there. Randy is very anxious to get his staples out...we are a little fearful that the lower portion of the staples may be rather painful during the removal process. Hopefully, Dr. Chan will be gentle. Randy continues to have in home physical therapy. He alternates days because he is usually in quite a bit of pain on his off days as he recovers from his workouts. We are so thankful that someone invented Tylenol and sometimes Vicodin. Randy will start radiation treatment on Monday...continue to pray that everything runs smoothly with that. We will also be heading to outpatient physical therapy in 2 more weeks 3x/week. We'll be busy, but are so thankful that there is medicine out there that helps save lives!!!! We've been able to head outdoors a bit and enjoy the nice weather. Randy walks some, rides in a wheelchair some and then sleeps lots :-) He is doing a very good job at listening to his body and when he is tired - he sleeps.

Anway, we hope you are enjoying your week and for those that celebrate...Happy St. Patrick's Day!

~Randy, Rachel, Joshua and Mocha :-)
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